Abstract
Background and Objectives: Few reports have investigated patient experiences following total en bloc sacrectomy. The aims of this study were to obtain a deeper understanding of patients’ personal experiences, needs, and satisfaction with the treatment to reveal areas in which perioperative and long-term patient care can be improved. Methods: A qualitative design was applied to examine patient experiences and supportive care needs. Patients treated between 2007 and 2017 were identified from our institutional database. Results: A total of 28 survivors were interviewed (13 females, age 13-75 years). Eight themes were identified: the effect of surgery on patients’ (a) daily lives, (b) social activities, (c) work or school activities, (d) and family lives; (e) acceptance of ostomy surgery; (f) need for guidance regarding long-term rehabilitation; (g) satisfaction with the medical services provided in the hospital; and (h) satisfaction with the treatment outcomes. Conclusion: Total en bloc sacrectomy can yield satisfactory oncological outcomes; however, the procedure is a life-changing event for patients and their families. Physicians must provide long-term support and guidance after surgery to enable patients to fully understand and cope with the changes in their lives.
Original language | English (US) |
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Pages (from-to) | 1497-1504 |
Number of pages | 8 |
Journal | Journal of surgical oncology |
Volume | 120 |
Issue number | 8 |
DOIs | |
State | Published - Dec 1 2019 |
Keywords
- patient experience
- qualitative study
- total en bloc sacrectomy
ASJC Scopus subject areas
- Surgery
- Oncology