TY - JOUR
T1 - Concepts and definitions for "supportive care," "best supportive care," "palliative care," and "hospice care" in the published literature, dictionaries, and textbooks
AU - Hui, David
AU - De La Cruz, Maxine
AU - Mori, Masanori
AU - Parsons, Henrique A.
AU - Kwon, Jung Hye
AU - Torres-Vigil, Isabel
AU - Kim, Sun Hyun
AU - Dev, Rony
AU - Hutchins, Ronald
AU - Liem, Christiana
AU - Kang, Duck Hee
AU - Bruera, Eduardo
N1 - Funding Information:
Hospice care. Physical, psychological, social, and spiritual care administered to dying patients and families Hospice. A facility that provides hospice care and care itself Hospice care. No entry Hospice. A facility that provides palliative and supportive care for terminally ill patients and their families, either directly or on a consulting basis Hospice care. No entry Hospice. A hospital that cares only for the terminally ill and dying. The emphasis is on providing quality of life, and special care is taken in providing pain relief by whichever methods are deemed best suited to the person’s needs. Hospice care in the UK has been greatly developed, generally funded by a combination of the NHS and charitable funds, with activities supported by voluntary workers
PY - 2013/3
Y1 - 2013/3
N2 - Purpose: Commonly used terms such as "supportive care," "best supportive care," "palliative care," and "hospice care" were rarely and inconsistently defined in the palliative oncology literature. We conducted a systematic review of the literature to further identify concepts and definitions for these terms. Methods: We searched MEDLINE, PsycInfo, EMBASE, and CINAHL for published peer-reviewed articles from 1948 to 2011 that conceptualized, defined, or examined these terms. Two researchers independently reviewed each citation for inclusion and then extracted the concepts/definitions when available. Dictionaries/textbooks were also searched. Results: Nine of 32 "SC/BSC," 25 of 182 "PC," and 12 of 42 "HC" articles focused on providing a conceptual framework/definition. Common concepts for all three terms were symptom control and quality-of-life for patients with life-limiting illness. "SC" focused more on patients on active treatment compared to other categories (9/9 vs. 8/37) and less often involved interdisciplinary care (4/9 vs. 31/37). In contrast, "HC" focused more on volunteers (6/12 vs. 6/34), bereavement care (9/12 vs. 7/34), and community care (9/12 vs. 6/34). Both "PC" and "SC/BSC" were applicable earlier in the disease trajectory (16/34 vs. 0/9). We found 13, 24, and 17 different definitions for "SC/BSC," "PC," and "HC," respectively. "SC/BSC" was the most variably defined, ranging from symptom management during cancer therapy to survivorship care. Dictionaries/textbooks showed similar findings. Conclusion: We identified defining concepts for "SC/BSC," "PC," and "HC" and developed a preliminary conceptual framework unifying these terms along the continuum of care to help build consensus toward standardized definitions.
AB - Purpose: Commonly used terms such as "supportive care," "best supportive care," "palliative care," and "hospice care" were rarely and inconsistently defined in the palliative oncology literature. We conducted a systematic review of the literature to further identify concepts and definitions for these terms. Methods: We searched MEDLINE, PsycInfo, EMBASE, and CINAHL for published peer-reviewed articles from 1948 to 2011 that conceptualized, defined, or examined these terms. Two researchers independently reviewed each citation for inclusion and then extracted the concepts/definitions when available. Dictionaries/textbooks were also searched. Results: Nine of 32 "SC/BSC," 25 of 182 "PC," and 12 of 42 "HC" articles focused on providing a conceptual framework/definition. Common concepts for all three terms were symptom control and quality-of-life for patients with life-limiting illness. "SC" focused more on patients on active treatment compared to other categories (9/9 vs. 8/37) and less often involved interdisciplinary care (4/9 vs. 31/37). In contrast, "HC" focused more on volunteers (6/12 vs. 6/34), bereavement care (9/12 vs. 7/34), and community care (9/12 vs. 6/34). Both "PC" and "SC/BSC" were applicable earlier in the disease trajectory (16/34 vs. 0/9). We found 13, 24, and 17 different definitions for "SC/BSC," "PC," and "HC," respectively. "SC/BSC" was the most variably defined, ranging from symptom management during cancer therapy to survivorship care. Dictionaries/textbooks showed similar findings. Conclusion: We identified defining concepts for "SC/BSC," "PC," and "HC" and developed a preliminary conceptual framework unifying these terms along the continuum of care to help build consensus toward standardized definitions.
KW - Best supportive care
KW - Concepts
KW - Definitions
KW - Hospice care
KW - Palliative care
KW - Supportive care
KW - Terminology
UR - http://www.scopus.com/inward/record.url?scp=84874091122&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84874091122&partnerID=8YFLogxK
U2 - 10.1007/s00520-012-1564-y
DO - 10.1007/s00520-012-1564-y
M3 - Review article
C2 - 22936493
AN - SCOPUS:84874091122
SN - 0941-4355
VL - 21
SP - 659
EP - 685
JO - Supportive Care in Cancer
JF - Supportive Care in Cancer
IS - 3
ER -