Core outcome sets specifically for longterm observational studies: OMERACT special interest group update in rheumatoid arthritis

Maria A. Lopez-Olivo, José B. Negrón, Richard J. Zogala, Loreto Carmona, Karla Criner, Niti Goel, Laura Gonzalez-Lopez, Francesca Ingegnoli, Amye Leong, Lyn March, Beverly Shea, Vibeke Strand, Peter Tugwell, Tiffany Westrich-Robertson, Natalia V. Zamora, Robin Christensen, Maria E. Suarez-Almazor

Research output: Contribution to journalArticlepeer-review

7 Scopus citations

Abstract

Objective. This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis. Methods. Preliminary data and proposed next steps were outlined and discussed by participants. Results. Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death. Conclusion. The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

Original languageEnglish (US)
Pages (from-to)1164-1167
Number of pages4
JournalJournal of Rheumatology
Volume46
Issue number9
DOIs
StatePublished - Sep 1 2019

Keywords

  • Observational studies
  • Omeract
  • Outcome assessment
  • Registries
  • Rheumatoid arthritis

ASJC Scopus subject areas

  • Immunology and Allergy
  • Rheumatology
  • Immunology

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