TY - JOUR
T1 - A multicenter survey of Hispanic caregiver preferences for patient decision control in the United States and Latin America
AU - Yennurajalingam, Sriram
AU - Noguera, Antonio
AU - Parsons, Henrique Afonseca
AU - Torres-Vigil, Isabel
AU - Duarte, Eva Rosina
AU - Palma, Alejandra
AU - Bunge, Sofia
AU - Palmer, J. Lynn
AU - Delgado-Guay, Marvin Omar
AU - Bruera, Eduardo
N1 - Funding Information:
This research was supported in part by the MD Anderson Cancer Center support grant CA 016672; Dr Torres-Vigil was supported in part by the National Cancer Institute (grant no. 5K01CA151785-04). Similarly, S.Y. was supported by the American Cancer Society (RSG-11-170-01-PCSM), and E.B. was supported by National Institutes of Health grants R01NR010162-01A1, R01CA1222292.01, and R01CA124481-01.
PY - 2013/7
Y1 - 2013/7
N2 - Background: Understanding family caregivers' decisional role preferences is important for communication, quality of care, and patient and family satisfaction. The family caregiver has an important role in a patient's decisional role preferences. There are limited studies on family caregivers' preferences of the patient's decision control at the end of life among Hispanics. Aims: To identify Hispanic caregivers' preferences of the decision control of patients with advanced cancer and to compare the preferences of caregivers in Hispanic Latin American and Hispanic American caregivers. Design: We surveyed patients and their family caregivers referred to outpatient palliative care clinics in the United States, Chile, Argentina, and Guatemala. Caregiver preferences of patient's decision control were evaluated using the Control Preference Scale. Caregivers' and patients' sociodemographic variables, patient performance status, and Hispanic American patient acculturation level were also collected. Participants: A total of 387 caregivers were surveyed: 100 (26%) in Chile, 99 (26%) in Argentina, 97 (25%) in Guatemala, and 91 (24%) in the United States. The median age was 56 years, and 59% were female. Results: Caregiver preference of patient's decision control was passive, shared, and active for 10 (11%), 45 (52%), and 32 (37%) Hispanic American caregivers and 54 (19%), 178 (62%), and 55 (19%) Hispanic Latin American caregivers (p = 0.0023), respectively. Caregiver acculturation level did not affect the preferences of the Hispanic American sample (p = 0.60). Conclusions: Most Hispanic family caregivers preferred the patient to make shared decisions. Hispanic Latin American caregivers more frequently preferred patients to assume a passive decisional role. Acculturation did not influence the preferences of Hispanic American caregivers.
AB - Background: Understanding family caregivers' decisional role preferences is important for communication, quality of care, and patient and family satisfaction. The family caregiver has an important role in a patient's decisional role preferences. There are limited studies on family caregivers' preferences of the patient's decision control at the end of life among Hispanics. Aims: To identify Hispanic caregivers' preferences of the decision control of patients with advanced cancer and to compare the preferences of caregivers in Hispanic Latin American and Hispanic American caregivers. Design: We surveyed patients and their family caregivers referred to outpatient palliative care clinics in the United States, Chile, Argentina, and Guatemala. Caregiver preferences of patient's decision control were evaluated using the Control Preference Scale. Caregivers' and patients' sociodemographic variables, patient performance status, and Hispanic American patient acculturation level were also collected. Participants: A total of 387 caregivers were surveyed: 100 (26%) in Chile, 99 (26%) in Argentina, 97 (25%) in Guatemala, and 91 (24%) in the United States. The median age was 56 years, and 59% were female. Results: Caregiver preference of patient's decision control was passive, shared, and active for 10 (11%), 45 (52%), and 32 (37%) Hispanic American caregivers and 54 (19%), 178 (62%), and 55 (19%) Hispanic Latin American caregivers (p = 0.0023), respectively. Caregiver acculturation level did not affect the preferences of the Hispanic American sample (p = 0.60). Conclusions: Most Hispanic family caregivers preferred the patient to make shared decisions. Hispanic Latin American caregivers more frequently preferred patients to assume a passive decisional role. Acculturation did not influence the preferences of Hispanic American caregivers.
KW - Decisional role preferences
KW - Hispanics
KW - Latinos
KW - family caregivers
KW - palliative care
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U2 - 10.1177/0269216313486953
DO - 10.1177/0269216313486953
M3 - Review article
C2 - 23670718
AN - SCOPUS:84879752890
SN - 0269-2163
VL - 27
SP - 692
EP - 698
JO - Palliative Medicine
JF - Palliative Medicine
IS - 7
ER -