Data collection of patient outcomes: One institution's experience

Thomas J. Whitaker; Charles S. Mayo; Daniel J. Ma; Michael G. Haddock; Robert C. Miller; Kimberly S. Corbin; Michelle Neben-Wittich; James L. Leenstra; Nadia N. Laack; Mirek Fatyga; Steven E. Schild; Carlos E. Vargas; Katherine S. Tzou; Austin R. Hadley; Steven J. Buskirk; Robert L. Foote

doi:10.1093/jrr/rry013

Data collection of patient outcomes: One institution's experience

Thomas J. Whitaker, Charles S. Mayo, Daniel J. Ma, Michael G. Haddock, Robert C. Miller, Kimberly S. Corbin, Michelle Neben-Wittich, James L. Leenstra, Nadia N. Laack, Mirek Fatyga, Steven E. Schild, Carlos E. Vargas, Katherine S. Tzou, Austin R. Hadley, Steven J. Buskirk, Robert L. Foote

Research output: Contribution to journal › Article › peer-review

6 Scopus citations

Abstract

Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.

Original language	English (US)
Pages (from-to)	i19-i24
Journal	Journal of radiation research
Volume	59
DOIs	https://doi.org/10.1093/jrr/rry013
State	Published - Mar 1 2018
Externally published	Yes

Keywords

analytics
big data
informatics
patient outcomes
randomized controlled trials

ASJC Scopus subject areas

Radiation
Radiology Nuclear Medicine and imaging
Health, Toxicology and Mutagenesis

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10.1093/jrr/rry013

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Whitaker, T. J., Mayo, C. S., Ma, D. J., Haddock, M. G., Miller, R. C., Corbin, K. S., Neben-Wittich, M., Leenstra, J. L., Laack, N. N., Fatyga, M., Schild, S. E., Vargas, C. E., Tzou, K. S., Hadley, A. R., Buskirk, S. J., & Foote, R. L. (2018). Data collection of patient outcomes: One institution's experience. Journal of radiation research, 59, i19-i24. https://doi.org/10.1093/jrr/rry013

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abstract = "Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.",

keywords = "analytics, big data, informatics, patient outcomes, randomized controlled trials",

author = "Whitaker, {Thomas J.} and Mayo, {Charles S.} and Ma, {Daniel J.} and Haddock, {Michael G.} and Miller, {Robert C.} and Corbin, {Kimberly S.} and Michelle Neben-Wittich and Leenstra, {James L.} and Laack, {Nadia N.} and Mirek Fatyga and Schild, {Steven E.} and Vargas, {Carlos E.} and Tzou, {Katherine S.} and Hadley, {Austin R.} and Buskirk, {Steven J.} and Foote, {Robert L.}",

note = "Publisher Copyright: {\textcopyright} The Author(S) 2018. Published by Oxford University Press on behalf of The Japan Radiation Research Society and Japanese Society for Radiation Oncology.",

year = "2018",

month = mar,

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doi = "10.1093/jrr/rry013",

language = "English (US)",

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T2 - One institution's experience

AU - Whitaker, Thomas J.

AU - Mayo, Charles S.

AU - Ma, Daniel J.

AU - Haddock, Michael G.

AU - Miller, Robert C.

AU - Corbin, Kimberly S.

AU - Neben-Wittich, Michelle

AU - Leenstra, James L.

AU - Laack, Nadia N.

AU - Fatyga, Mirek

AU - Schild, Steven E.

AU - Vargas, Carlos E.

AU - Tzou, Katherine S.

AU - Hadley, Austin R.

AU - Buskirk, Steven J.

AU - Foote, Robert L.

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N2 - Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.

AB - Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.

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KW - big data

KW - informatics

KW - patient outcomes

KW - randomized controlled trials

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ER -

Data collection of patient outcomes: One institution's experience

Abstract

Keywords

ASJC Scopus subject areas

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