Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative

Sebastian Bruera; Loreto Carmona; Maria A. Lopez-Olivo; Tiffany Westrich-Robertson; Lyn March; Jose B. Negron; Robin Christensen; Vibeke Strand; Francesca Ingegnoli; Niti Goel; Beverley Shea; Peter Tugwell; Amye Leong; Clifton O. Bingham; Catherine L. Hill; Maria E. Suarez-Almazor

doi:10.1016/j.semarthrit.2021.08.003

Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative

Sebastian Bruera, Loreto Carmona, Maria A. Lopez-Olivo, Tiffany Westrich-Robertson, Lyn March, Jose B. Negron, Robin Christensen, Vibeke Strand, Francesca Ingegnoli, Niti Goel, Beverley Shea, Peter Tugwell, Amye Leong, Clifton O. Bingham, Catherine L. Hill, Maria E. Suarez-Almazor

Health Services Research

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4 Scopus citations

Abstract

Objectives: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. Methods: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. Results: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. Conclusions: The meeting provided future directions to identify and select a core set of domains for use in LOS.

Original language	English (US)
Pages (from-to)	1113-1116
Number of pages	4
Journal	Seminars in Arthritis and Rheumatism
Volume	51
Issue number	5
DOIs	https://doi.org/10.1016/j.semarthrit.2021.08.003
State	Published - Oct 2021

Keywords

OMERACT
cohort studies
observational studies
patient registries
patient-centered outcomes
rheumatoid arthritis

ASJC Scopus subject areas

Rheumatology
Anesthesiology and Pain Medicine

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10.1016/j.semarthrit.2021.08.003

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Bruera, S., Carmona, L., Lopez-Olivo, M. A., Westrich-Robertson, T., March, L., Negron, J. B., Christensen, R., Strand, V., Ingegnoli, F., Goel, N., Shea, B., Tugwell, P., Leong, A., Bingham, C. O., Hill, C. L., & Suarez-Almazor, M. E. (2021). Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative. Seminars in Arthritis and Rheumatism, 51(5), 1113-1116. https://doi.org/10.1016/j.semarthrit.2021.08.003

Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative. / Bruera, Sebastian; Carmona, Loreto; Lopez-Olivo, Maria A. et al.
In: Seminars in Arthritis and Rheumatism, Vol. 51, No. 5, 10.2021, p. 1113-1116.

Research output: Contribution to journal › Article › peer-review

Bruera, S, Carmona, L, Lopez-Olivo, MA, Westrich-Robertson, T, March, L, Negron, JB, Christensen, R, Strand, V, Ingegnoli, F, Goel, N, Shea, B, Tugwell, P, Leong, A, Bingham, CO, Hill, CL & Suarez-Almazor, ME 2021, 'Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative', Seminars in Arthritis and Rheumatism, vol. 51, no. 5, pp. 1113-1116. https://doi.org/10.1016/j.semarthrit.2021.08.003

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abstract = "Objectives: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. Methods: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. Results: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. Conclusions: The meeting provided future directions to identify and select a core set of domains for use in LOS.",

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AU - Bruera, Sebastian

AU - Carmona, Loreto

AU - Lopez-Olivo, Maria A.

AU - Westrich-Robertson, Tiffany

AU - March, Lyn

AU - Negron, Jose B.

AU - Christensen, Robin

AU - Strand, Vibeke

AU - Ingegnoli, Francesca

AU - Goel, Niti

AU - Shea, Beverley

AU - Tugwell, Peter

AU - Leong, Amye

AU - Bingham, Clifton O.

AU - Hill, Catherine L.

AU - Suarez-Almazor, Maria E.

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AB - Objectives: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. Methods: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. Results: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. Conclusions: The meeting provided future directions to identify and select a core set of domains for use in LOS.

KW - OMERACT

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KW - observational studies

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Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative

Abstract

Keywords

ASJC Scopus subject areas

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