TY - JOUR
T1 - End-of-Life Care for Undocumented Immigrants With Advanced Cancer
T2 - Documenting the Undocumented
AU - Jaramillo, Sylvia
AU - Hui, David
N1 - Publisher Copyright:
© 2016 American Academy of Hospice and Palliative Medicine
PY - 2016/4/1
Y1 - 2016/4/1
N2 - There are approximately 11.1 million undocumented immigrants in the United States, with a majority being Latino. Cancer is now the leading cause of death in Latinos. There is little research guiding providers on how to deliver optimal end-of-life care in this population. We describe a case of an undocumented Latino patient with advanced cancer, and provide a review of the literature on end-of-life care in undocumented immigrants. Our patient encountered many challenges as he navigated through the healthcare system in the last months of life. These included delayed diagnosis, limited social support, financial issues, fear of deportation, and language and cultural barriers, which resulted in significant physical and psychological distress. Within the undocumented patient population, there is often a lack of advance care planning, prognostic understanding, mistrust, religious practices, and cultural beliefs that may affect decision making. Given the growing number of undocumented immigrants in the United States, it is important for clinicians and policy makers to have a better understanding of the issues surrounding end-of-life care for undocumented immigrants, and work together to improve the quality of life and quality of end-of-life care for these disadvantaged individuals.
AB - There are approximately 11.1 million undocumented immigrants in the United States, with a majority being Latino. Cancer is now the leading cause of death in Latinos. There is little research guiding providers on how to deliver optimal end-of-life care in this population. We describe a case of an undocumented Latino patient with advanced cancer, and provide a review of the literature on end-of-life care in undocumented immigrants. Our patient encountered many challenges as he navigated through the healthcare system in the last months of life. These included delayed diagnosis, limited social support, financial issues, fear of deportation, and language and cultural barriers, which resulted in significant physical and psychological distress. Within the undocumented patient population, there is often a lack of advance care planning, prognostic understanding, mistrust, religious practices, and cultural beliefs that may affect decision making. Given the growing number of undocumented immigrants in the United States, it is important for clinicians and policy makers to have a better understanding of the issues surrounding end-of-life care for undocumented immigrants, and work together to improve the quality of life and quality of end-of-life care for these disadvantaged individuals.
KW - Emigrants
KW - Hispanic Americans
KW - health care disparities
KW - immigrants
KW - neoplasms
KW - palliative care
KW - terminal care
UR - http://www.scopus.com/inward/record.url?scp=84954286931&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84954286931&partnerID=8YFLogxK
U2 - 10.1016/j.jpainsymman.2015.11.009
DO - 10.1016/j.jpainsymman.2015.11.009
M3 - Article
C2 - 26681362
AN - SCOPUS:84954286931
SN - 0885-3924
VL - 51
SP - 784
EP - 788
JO - Journal of pain and symptom management
JF - Journal of pain and symptom management
IS - 4
ER -