Moving forward with the American Lymphedema Framework Project (ALFP)

We are moving ahead in year two of the three-year National Library of Medicine G08 grant on Cyber Informatics Tools for Lymphoedema Stakeholders which enables us to develop and build the infrastructure for the American Lymphoedema Framework Projecct (ALFP) lymphoedema minimum data set (MDS). The ultimate goal is to create an operational cyber infrastructure that collects, organises, and disseminates up-to-date information to lymphoedema stakeholders. Five US clinical and research data sets are in hand for beta-testing the infrastructure, and arrangements are being made to accept several additional national and international data sets. Queries on participating inthe MDS are welcomed from research and clinical partners around the countryand internationally.