TY - JOUR
T1 - Outcome measurement and complex physical, psychosocial and spiritual experiences of death and dying
AU - Azhar, Ahsan
AU - Bruera, Eduardo
N1 - Funding Information:
We appreciate Mrs. Elida G. Galan, Senior Administrative Assistant, Department of Palliative Care, Rehabilitation and Integrative Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, for her support in formatting the figure and tables.
Publisher Copyright:
© Annals of Palliative Medicine. All rights reserved.
PY - 2018/10/1
Y1 - 2018/10/1
N2 - Patients with advanced illnesses, especially near the end of life, often experience multiple complex symptoms which may have profound impact on the quality of life of not only the patients but also their family members. Early and prompt recognition of such clinical challenges is linked with better end of life care for the dying patients, their caregivers and family members. In this narrative, which is not meant to be an in-depth systematic review, we attempt to provide an overview of some commonly used outcome measurement tools available for bedside clinical assessment of the different dimensions of suffering, especially near the time of death. We also mention need for recognition of conditions, like delirium and other personal, environmental and social factors, to draw the readers' attention towards the importance of such assessments, as these may influence interpretation of patient responses on the tools being used to measure outcomes.
AB - Patients with advanced illnesses, especially near the end of life, often experience multiple complex symptoms which may have profound impact on the quality of life of not only the patients but also their family members. Early and prompt recognition of such clinical challenges is linked with better end of life care for the dying patients, their caregivers and family members. In this narrative, which is not meant to be an in-depth systematic review, we attempt to provide an overview of some commonly used outcome measurement tools available for bedside clinical assessment of the different dimensions of suffering, especially near the time of death. We also mention need for recognition of conditions, like delirium and other personal, environmental and social factors, to draw the readers' attention towards the importance of such assessments, as these may influence interpretation of patient responses on the tools being used to measure outcomes.
KW - Death and dying
KW - Palliative care
KW - Patient reported outcomes (pros)
KW - Psychological distress
KW - Social distress
KW - Spiritual pain
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U2 - 10.21037/apm.2018.07.04
DO - 10.21037/apm.2018.07.04
M3 - Article
C2 - 30180737
AN - SCOPUS:85055079351
SN - 2225-319X
VL - 7
SP - S231-S243
JO - Annals of Cardiothoracic Surgery
JF - Annals of Cardiothoracic Surgery
ER -