Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study

Shanshan Wei; Fanglin Chen; Hongyan Chen; Ying Guo; David Hui; Sriram Yennurajalingam; Gary Chisholm; En Liu; Zhongli Liao; Li Yang; Heng Cheng; Yuanyuan Zhou; Hong Guo; Eduardo Bruera

doi:10.1177/1049909115588302

Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study

Shanshan Wei, Fanglin Chen, Hongyan Chen, Ying Guo, David Hui, Sriram Yennurajalingam, Gary Chisholm, En Liu, Zhongli Liao, Li Yang, Heng Cheng, Yuanyuan Zhou, Hong Guo, Eduardo Bruera

Palliative, Rehabilitation, and Integrative Medicine

Research output: Contribution to journal › Article › peer-review

8 Scopus citations

Abstract

Background: Understanding the medical decision-making and information disclosure preferences is important for care quality. Objectives: To examine the feasibility of using the questionnaires and to identify modifications needed in the following study. Design: Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires. Results: More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions. Conclusions: Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.

Original language	English (US)
Pages (from-to)	733-741
Number of pages	9
Journal	American Journal of Hospice and Palliative Medicine
Volume	33
Issue number	8
DOIs	https://doi.org/10.1177/1049909115588302
State	Published - Sep 1 2016

Keywords

cancer
decision-making preference
family caregivers
information disclosure preference
patients
questionnaire modification

ASJC Scopus subject areas

General Medicine

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10.1177/1049909115588302

Cite this

Wei, S., Chen, F., Chen, H., Guo, Y., Hui, D., Yennurajalingam, S., Chisholm, G., Liu, E., Liao, Z., Yang, L., Cheng, H., Zhou, Y., Guo, H., & Bruera, E. (2016). Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study. American Journal of Hospice and Palliative Medicine, 33(8), 733-741. https://doi.org/10.1177/1049909115588302

Wei, S, Chen, F, Chen, H, Guo, Y , Hui, D , Yennurajalingam, S, Chisholm, G, Liu, E, Liao, Z, Yang, L, Cheng, H, Zhou, Y, Guo, H & Bruera, E 2016, 'Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study', American Journal of Hospice and Palliative Medicine, vol. 33, no. 8, pp. 733-741. https://doi.org/10.1177/1049909115588302

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abstract = "Background: Understanding the medical decision-making and information disclosure preferences is important for care quality. Objectives: To examine the feasibility of using the questionnaires and to identify modifications needed in the following study. Design: Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires. Results: More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions. Conclusions: Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.",

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author = "Shanshan Wei and Fanglin Chen and Hongyan Chen and Ying Guo and David Hui and Sriram Yennurajalingam and Gary Chisholm and En Liu and Zhongli Liao and Li Yang and Heng Cheng and Yuanyuan Zhou and Hong Guo and Eduardo Bruera",

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AU - Wei, Shanshan

AU - Chen, Fanglin

AU - Chen, Hongyan

AU - Guo, Ying

AU - Hui, David

AU - Yennurajalingam, Sriram

AU - Chisholm, Gary

AU - Liu, En

AU - Liao, Zhongli

AU - Yang, Li

AU - Cheng, Heng

AU - Zhou, Yuanyuan

AU - Guo, Hong

AU - Bruera, Eduardo

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AB - Background: Understanding the medical decision-making and information disclosure preferences is important for care quality. Objectives: To examine the feasibility of using the questionnaires and to identify modifications needed in the following study. Design: Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires. Results: More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions. Conclusions: Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.

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Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study

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