TY - JOUR
T1 - Social Media and Myeloproliferative Neoplasms (MPN)—Focus on Twitter and the Development of a Disease-specific Community
T2 - #MPNSM
AU - Pemmaraju, Naveen
AU - Gupta, Vikas
AU - Mesa, Ruben
AU - Thompson, Michael A.
N1 - Funding Information:
This research is supported in part by the MD Anderson Cancer Center Support Grant P30 CA016672. The authors thank Dr. Matthew Katz and the creators of the Cancer Ontology Tag (CTO) program for their example and inspiration, the founders and members of Symplur.com, and the Healthcare Hashtags Project for their continued analysis and support.
Publisher Copyright:
© 2015, Springer Science+Business Media New York.
PY - 2015/12/1
Y1 - 2015/12/1
N2 - The advent of social media has led to the ability for individuals all over the world to communicate with each other, in real time, about mutual topics of interest in an unprecedented manner. Recently, the use of social media has increased among people interested in healthcare and medical research, particularly in the field of hematology and oncology, a field which frequently experiences rapid shifts of information and novel, practice-changing discoveries. Among the many social media platforms available to cancer patients and providers, one platform in particular, Twitter, has become the focus for the creation of disease-specific communities, especially for those interested in, affected by, or those who perform research in the fields of rare cancers, which historically have had a dearth of reliable information available. This article will focus on the initiation and progress of one such Twitter hematology/oncology community, #mpnsm, which was originally created for the purpose of serving as a venue for improving the interaction among patients, providers, researchers, and organizations with interest in the myeloproliferative neoplasms (MPNs) and to further the availability of reliable up-to-date analysis; relevant expert commentary; and readily usable information for patients, providers, and other groups interested in this field.
AB - The advent of social media has led to the ability for individuals all over the world to communicate with each other, in real time, about mutual topics of interest in an unprecedented manner. Recently, the use of social media has increased among people interested in healthcare and medical research, particularly in the field of hematology and oncology, a field which frequently experiences rapid shifts of information and novel, practice-changing discoveries. Among the many social media platforms available to cancer patients and providers, one platform in particular, Twitter, has become the focus for the creation of disease-specific communities, especially for those interested in, affected by, or those who perform research in the fields of rare cancers, which historically have had a dearth of reliable information available. This article will focus on the initiation and progress of one such Twitter hematology/oncology community, #mpnsm, which was originally created for the purpose of serving as a venue for improving the interaction among patients, providers, researchers, and organizations with interest in the myeloproliferative neoplasms (MPNs) and to further the availability of reliable up-to-date analysis; relevant expert commentary; and readily usable information for patients, providers, and other groups interested in this field.
KW - Disease-specific hashtag
KW - Myelofibrosis
KW - Myeloproliferative neoplasm
KW - Polycythemia vera
KW - Social media
KW - Twitter
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UR - http://www.scopus.com/inward/citedby.url?scp=84949530896&partnerID=8YFLogxK
U2 - 10.1007/s11899-015-0287-9
DO - 10.1007/s11899-015-0287-9
M3 - Review article
C2 - 26411990
AN - SCOPUS:84949530896
SN - 1558-8211
VL - 10
SP - 413
EP - 420
JO - Current hematologic malignancy reports
JF - Current hematologic malignancy reports
IS - 4
ER -