Abstract
This article addresses conceptual challenges and theoretical approaches for examining the role of the family in responding and adapting to genetic testing for inherited conditions. Using a family systems perspective, family-based constructs that are relevant to genetic testing may be organized into three domains: family communication, organization and structure of family relationships, and health-related cognitions and beliefs shared within families. Empirical findings are presented from key content areas in family-based genetics research, including family communication, how genetic testing affects family relationships, psychological responses to genetic testing in the family context, and family-based influences on health decisions. Future research should explore decision making about genetic testing or behavior change specifically within the context of the family system and should identify family-based determinants of genetic testing outcomes.
Original language | English (US) |
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Pages (from-to) | 627-639 |
Number of pages | 13 |
Journal | Health Education and Behavior |
Volume | 32 |
Issue number | 5 |
DOIs | |
State | Published - Oct 2005 |
Keywords
- Family
- Genetic testing
- Psychosocial
ASJC Scopus subject areas
- Arts and Humanities (miscellaneous)
- Public Health, Environmental and Occupational Health
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Susan K Peterson (Director) & Karen M Basen-Engquist (Director)
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